Learning Explorations ~ Naming is Taming- A family centered approach to Living with the Uncertainty of Serious Illness

SESSION INFO: Being a Parent or Caregiver to a child living with medical complexity is to weather the ups and downs of uncertainty, to witness your child live through a cascade of losses, and likely to be imprinted with the effects of traumatic stress. Activating resilience in the midst of providing day-to-day care can often feel elusive. Explore a few key concepts from a trauma-informed and attachment-based practice that might support how you think about caring for your child.

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Mary Coleman has specialized in the field of palliative care and supportive care since 2004 in both adult and pediatric programs. She is currently a social worker at Canuck Place Children’s Hospice in Vancouver BC. Her focus in palliative care began in the UK working with diverse communities of children and families living with HIV and AIDS. Other previous roles include a home hospice program in San Francisco, Vancouver Home Hospice Team and the North Shore Home and Community Care team in both direct clinical care as well as education to the inter-disciplinary community teams.

Zoe Schwartz is a Complex Care Coordinator and Social Worker at BC Children’s Hospital. She works primarily with patients who have chronic health conditions and provides supportive counseling, connection to community resources and support in navigating the healthcare system.

Tessa Diaczun received her Masters of Nursing, Pediatric Nurse Practitioner graduate degree at the University of Toronto over 10 years ago. She works in the Complex Care Program at BC Children’s Hospital as well as the Child & Youth Primary Care Clinic. She teaches in the UBC NP Program and has spent most of her RN and NP career working with children with medical complexity and their families. She is also a mom to a 5 year old girl and is passionate about climate justice and activism.

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